Foundation of HOPE Therapies is the brainchild of company Director and principle Occupational Therapist Jana-Jade Loadsman. Jana grew up on the Tweed Coast, in Northern NSW, and knew this was the only place that she wanted to raise her beautiful family, when she met and married her sweetheart over 18 years ago.
After enjoying a long career in hospitality and business management, running her own family business for the majority of the last 16 years with husband Shane, and following the birth of their 5 beautiful children, 3 of whom have an inherited congenital chromosome abnormality, resulting in Alagille Syndrome, organ failure, epilepsy, growth delay, PEG feeding and various stages of developmental delay, Jana decided it was time to make a serious mark on the world and so enrolled within her Occupational Therapy degree at Southern Cross University Gold Coast Campus in 2013.
Jana successfully completed her Occupational Therapy degree, graduating with honours, in early 2019, and only ever had one goal:
To change the world one family at a time.
This dream stemmed from a long and often challenging journey through the local and interstate medical and health systems, and the demands placed on and within families, whilst navigating her way through her own children's illnesses and disabilities.
Three of Jana's own children have battled the various effects of an inherited chromosome abnormality, which had resulted in two of her children inheriting a Jagged 1 chromosome abnormality, which resulted in Alagille syndrome. A multi system genetic disorder that effects the liver, heart, eyes, spine, kidneys and often results in developmental delay and failure to thrive. Jana's other daughter however, inherited a "mirror opposite" genetic translocation of no name, which has seen Jana's second daughter, experience a significant epilepsy disorder resulting in all types of seizures, growth anomalies, behavioural issues, and developmental delay.
However, it was Jana's youngest child, and the baby of the family, little Harper, experiencing the worst of the Alagille Syndrome condition following her birth in late 2014. Coupled with Biliary Atresia, little Harper spent most of the first 3 years of her life in Brisbane Childrens Hospital, with extensive failure to thrive, significant feeding issues, multiple surgeries, extensive medical interventions and a failing liver, which resulted in Harper requiring a lifesaving liver transplant in October 2017. However, Harper's recovery was full of often very severe and serious complications, which required Jana to advocate extensively for her baby daughter, in order for her to survive. All awhile caring for her 4 other children, in a city that she didn't even reside. And if life wasn't complicated enough for Jana, she also assisted with supporting her father to health following a very significant traumatic brain injury in early 2013, and aided her own mother to pass away at home in 2015, following a very quick battle with brain cancer. All a while her own daughter was fighting for her life in a Brisbane Children's Hospital.
This journey to and through both her children's and family's complicated diagnoses and health conditions, has not only taught Jana ALOT when it comes to family advocacy, occupational therapy and fighting for the health and wellbeing of your child; But it also empowered her to want to make more of a difference for other families going through a similar journey...
So when the opportunity was presented to Jana to complete an honours research thesis on 'Family wellbeing, when the family includes a child with a disability and complex medical condition in regional, rural and remote Australia', Jana jumped at the chance. And after its successful completion in early 2019, it has just been announced that this immensely important research HAS NOW been published in the internationally renowned Journal of Disability and Society!!
Exploring the wellbeing of Australian families engaging with the National Disability Insurance Scheme in rural and regional areas
And so coupled with clinical research, her own experiences navigating the often challenging world of disability and health care, and seeing the effects on family wellbeing when the family is caring for a child or children with either one or both of a complex medical condition or disability in outer urban communities, Jana is determined that more is needed to be done to ensure that change WILL be implemented at all levels of society. But this requires an extensive evidence base to support family claims, to ensure changes can be implemented at the right levels. And so Jana has also taken her research thesis to PhD!!! (They say if you need something done, that you need to ask a busy person to do it. Because it always gets done, and well at that!!!!
Jana plans to take the Foundation of HOPE across Australia. So that every family, regardless of their geographical location, can access quality, consistent and collaborative multidisciplinary allied health care. And so we are aiming to recruit therapists across all allied health fields, including Speech Therapy, Physiotherapy, Social work, Podiatry, Counselling and Psychology in the near future.
If you would like to discuss any more information about the Foundation of HOPE Therapies, or to discuss how paediatric occupational therapy can help your child and family, then please do not hesitate to contact us today.
The Foundation of HOPE Therapies Team!
Jana was lucky to snap up the amazing Miss Ashie after a rather funny encounter at the Dentist of all places!!! Ash has extensive experience in Business management and administration and has entered the Foundation of Hope Family as Jana's "right hand brain" to ensure that the day to day running of the Foundation of Hope is as smooth as we need it to be!!!
Ashie hails from the Tweed Coast, and completed all of her schooling in the shire. So many of you may already know her face! Ash will be taking all your calls, emails and appointments, so ensure you say a big HELLO to her today!!!
Kym joins the Foundation of HOPE bringing copious amounts of knowledge in Early Intervention! Some of you may already be familiar with Kym as she has grown up in the Tweed Shire and has spent the past 15+ years working at a local pre-school.
Along with years of experience, Kym also holds her Teaching Degree, safe to say her passion and love for her work shines through in all she does!
"I love working with children and adults to help give them the tools to reach their full potential. I am lucky to be in a position at the Foundation of Hope Therapies to do this, and I look forward to meeting you all and being a part of your journey."
In her spare time, you can find Kym spending quality time with her two big kids, taking a walk by the beach or exploring local restaurants!
We have big plans with Kym and can't wait for you all to meet her!!
A father of two, Wade was born in Auckland, moving to Australia in 1999. Wade lives an active life, playing lawn bowls and exploring the outdoors whenever he has the chance! With a love for music, you can find Wade singing along to the tunes on of his guitar when his not outdoors.
Three years ago, Wades mum suffered from a sub arachnoid haemorrhage (stroke), leaving her in a critical condition. Already passionate about helping people, Wade took an active role in her rehabilitation. It was during this time that he was encouraged to become an Occupational Therapist, enrolling in university.
Through his working life, Wade has gained years of knowledge and lived experience as a Tradesman, Musician, Father, Support Worker and Occupational Therapist.
Wade is passionate about helping people and making them smile and can't wait to work with your family!!
If you would like to see how Wade can fit in with your family and help reach your goals, let Ash or Jana know today!! We can't wait for you to meet him and welcome him to the Foundation.
Master Kynan Loadsman is the eldest child of Foundation of Hope Owners and Director Jana-Jade Loadsman.
Kynan has spent the majority of his life being a Young Carer, after the birth of Jana's second, third and fifth children were born with multiple complex needs. With dad Shane working away to support the family for the last 12 years, Kynan took on the role of Master of the House and was always there for every single long hospital stay, when the Loadsman girls were battling for their life.
This only fuelled Kynan's passion to follow his Mum and enter into a long and fruitful career in Allied Health!!! Kynan dreams of completing his degree in Physiotherapy, and so is awaiting his 2020 ATAR marks and University placement for 2021.
A keen surfer, skater and just an all round earth Angel, Kynan is ready to support our teens in their journey to achieving their goals!!!
If you want to meet Kynan to see how he can fit in with YOUR child's goals, let Ash or Jana know today!!! We can't wait for you to meet him and to welcome him into our new clinic!!!